嚴重蕁麻疹伴隨公主病所苦 醫師陪病人走出陰霾
2022-07-28 記者陳宜琳/嘉義報導
53歲郭女士,長年受慢性蕁麻疹所苦,經常因急性發作造成皮膚紅腫、喉嚨腫大、喘不過氣來,加上纖維肌痛症,長年全身痠痛、疲憊,伴隨睡眠不良、記憶不好及憂鬱症等情緒問題,四處求醫仍無法改善,甚至想要結束生命。
郭女士說,101年發病,一星期可掛五次急診,身上的皮膚紅腫,求醫並不順利,有些醫師判定是過敏的狀況,打完抗組織胺、類固醇就回家,可是狀況越來越嚴重。有醫師在治療三個月後直接說沒辦法醫治,另請高明。那時候每天都很不開心,憂愁著臉躲在家裡,晚上不開燈,講出來的話都是不好聽的話,甚至一度想自殺。
102年某天急性期發作,來到大林慈濟醫院急診室,風濕免疫科許寶寶醫師說:「你現在狀況很危急,你好好休息,把問題交給我,我來查原因。」郭女士突然覺得好安心,終於有醫師願意幫助自己。
許寶寶醫師表示,郭女士的慢性蕁麻疹經常急性發作,主要在皮膚上會出現紅、腫、癢的症狀,合併血管性水腫,造成臉、眼睛周圍、喉嚨、嘴唇、四肢腫脹,有時會過敏性休克,嚴重可引起窒息;又伴隨俗稱公主病的纖維肌痛症,造成她全身痠痛,疲憊與睡眠不良、記憶不好、憂鬱症等情緒問題,而最嚴重的還是心理問題,會進而影響身體的疾病。
經由許寶寶醫師的鼓勵逐漸轉念,郭女士說,身體的疾病常會讓情緒低落,但有了正確的觀念跟信仰,會覺得病痛需要自己接受它,開心的心態,與人互相的關心,真的病痛雖然還會存在,但狀況跟生活的品質會改善很多,現在一個月發作兩次就算多了。
許寶寶醫師指出,十個患者中,七、八成都伴隨心理疾病。身體疾病可以用藥物慢慢治療,但心理的疾病要靠改變自己才能得解脫。每位患者都要很樂觀,能接受疾病,與疾病共存,心理改變了,歡喜心面對,治療的效果會加倍。以前郭女士常常跑急診,現在去除了自己心中的陰暗面,迎向陽光,更走出來鼓勵其他的病患,選擇歡喜與疾病共存。
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